WOW! How has it been more than a month from my last post? Where has the time gone??? Oh ya, I was swallowed up in the end of the school year! Good news: I survived, and so did my students.
This year the "end of the school year" was a little tougher on me. Dylan's "end of the school year" meant graduating Pre-K and getting ready to move on to Kindergarten. Again, I ask myself, where did the time go? Seems like yesterday we were coming home from the hospital and I would spend the next several weeks just holding and snuggling him. Now, we are preparing for Kindergarten. It seems to me like once a child starts school, the time really just zooms by. I'm not ready for that...I want to keep him 5 forever, well, for as long as I remain the "favorite" girl in his world anyway! :-) Dylan celebrated his 5th birthday on the 25th of May. It seemed more like a birth-week for him. He started the week with a birthday party with friends, which he loved. We had 6 kids over to help celebrate and they were all wonderful! On his actual birthday we ALL went to Pizza Ranch for supper. Kaylee loved her first trip out for supper with the whole family, and Dylan was incredibly happy to have Kaylee with us. To finish up the week, we had another birthday party at the end of the week to celebrate with the extended family. As usual, Dylan was spoiled rotten! He does seem to really be enjoying his new Spider Man bike! We've been on many bike rides in the last week.
Well, as you can tell by the title of the post, we have more great news coming from our house. It was late January that Kaylee started taking small steps by herself. She wouldn't go far, and often times would depend on the furniture to help support her while trying to walk. However, she has long moved on from then. In the last few days she has decided she can do it all by herself...and she can! She has walked all through the living room and kitchen with NO help. She is beyond proud of herself, as are Troy and I. To see the smile on her face after she has walked across the room, well, it is pretty much priceless. I remember while Kaylee was still at Mayo right after being born. We were sitting in a "care conference" and I remember Dr. Selcen saying that she might be 3 or older before she walked. At that time I thought it seemed like forever and I could never imagine her not being able to walk by then. It kind of felt like a black cloud just hanging over me. However, today that cloud was pushed away and the sun came out. It doesn't seem like we've been on this ride for 2 1/2 years, and it doesn't seem like forever before Kaylee started walking. I guess it is a good thing that it doesn't seem like it has taken forever. I am so excited for her to be able to be more mobile. She has already figured out that she can get places so much faster by walking, and she thinks we can better keep up with the rest of us too.
Her swallowing hasn't really made any changes. She is playing around with food and putting food in her mouth much more than before. If someone has something to eat, she thinks she needs to have it too. She'll put food items up to her mouth, roll her tongue around it and sometimes even bite down on it. I think she is starting to realize that we all eat, and that it is enjoyable, so she is wanting to do it too. Just like walking, she saw all of us doing it, wanted to also, but it just took time. I believe the swallowing will be the same way. It is just going to take time, and we must all learn to be patient. It is especially hard for us to remain patient on this issue simply because swallowing would eliminate so many of Kaylee's troubles. It too will come though, I just know it will.
We make a trip to Mayo on the 14th for a few days of appointments. I'm super excited to see what Dr. Selcen thinks of Kaylee's progress. My only worry is that Kaylee wont be the most cooperative, as Dr. Selcen's appointment is at the end of a long day of other appointments. I'm also excited to see the Orthopedic Surgeon, Dr. Stans. He was impressed with Kaylee's ability to walk with help the last time we were there, I can only imagine how pleased he'll be seeing her walk on her own just 6 months later.
Happy summer to everyone! I hope you all get to get out and enjoy yourselves in the next few months. We'll be busy moving, but I plan to make plenty of time for trips to the park, picnics, and a few days at the pool too!